Neuromuscular disease is a lifelong illness. People living with the disease deal with daily pain and deformity, coupled with a loss of independence and the ability to walk, talk and eat. Many neuromuscular diseases produce weakness of respiratory muscles and result in respiratory failure. The provision of specialist respiratory support has made the greatest contribution to improving morbidity and mortality in sufferers of the disease.
The Long Term Ventilation Service (LTV) provides complex respiratory support to patients requiring mechanical ventilation in the community, including face masks and endotracheal intubation. The service is highly valued by sufferers as it can facilitate early discharge from hospital and provide support to keep patients in the community. As the geographic area over which the service is provided has increased, it has become more difficult to provide this service to patients.
The NHS Lothian LTV has recognised that the use of technology could enhance their interaction with patients by improving access to the service, improving the information available to the clinical team to help them make decisions and reducing the travel time to assess patients, allowing more time to be spent on clinical care.
Tele-ventilation will build on the work of the existing Telescot programme, which investigates internet technology enabled self-monitoring for a number of long term health conditions. The project provides an opportunity to trial the Mobile Healthcare Networks-Data Acquisition Platform (MHNDAP), an application that can capture data from medical devices and deliver that data in real-time to patient information databases. This will allow the
team to gather valuable feedback on its performance and usefulness from patients, nurses and clinicians.
It is hoped the project will improve access to a specialist LTV service for patients throughout Scotland by removing geographical barriers to assessment and treatment and reduce the need for patients to travel to unnecessary appointments as a result of better monitoring.
This project is within the factory stage of our innovation model and is currently undergoing a DHI funded study with NHS Lothian.
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